The aim of Nayi Disha is to empower the parents by providing them with information and connecting them to host of providers and fellow parents, just like our logo states: INFORM, CONNECT and EMPOWER! Our three pillars of our work are:
SERVICE PROVIDER DIRECTORY
We are building a supportive digital ecosystem of all the service providers working with people with Intellectual and Developmental Disabilities (IDD).
The combination of the type of intellectual disability, severity of the disorder, associated medical conditions, age, gender, economic status and geographical location of the family forms a unique need of services for people with Intellectual and Developmental Disabilities(PwIDD). Families are unable to often unable find out the right services. Nayi Disha team has, therefore, built a comprehensive and verified listing of more than 300 providers delivering a range of services (educational, healthcare, recreational and therapeutic) for PwIDD in Hyderabad.
PARENT COMMUNITY BUILDING
Families of PwIDD provide lifelong and continuous support to their special child, which often leaves them feeling isolated, lonely and emotionally exhausted. In order to ensure that families remain motivated and receive emotional support through this difficult journey, Nayi Disha has created online groups for families . We also host
Parent support group meet
Family fun events
from time to time. Our families claim that they not only find emotional support but also find useful information from trusted sources, i.e. other parents .
KNOWLEDGE HUB :
Once a child is diagnosed with an intellectual disability; families have various information needs and seek information on the disorder, associated complications, available government schemes etc. With this need in mind, Nayi Disha team is developing e-content for parent learning. Information on various disorders and different government schemes is already available on the online platform. Towards this goal, we conduct
- Parent Empowerment Workshops: Nayi Disha has partnered with special schools to regularly organize parent empowerment workshops on various themes from behavior management to nutrition.
- Meet the Expert: Nayi Disha team also conducts a ‘Meet the Expert’ series which is an informal forum for parents to meet experts such as neurologists, developmental pediatricians, psychologists and get their queries answered.
Furthermore, we have also recorded these parent empowerment workshops and meet the expert events and made them available on the platform in the form of audios and videos. We are partnering with subject matter experts from the field to develop articles, FAQs, audios and learning videos on various themes from nutrition to seizure management.