Nayi Disha Resource Centre - An online information resource

Nayi Disha Resource Centre is an online information resource platform that supports families of persons with Intellectual and Developmental Disabilities (IDD). We are a group of individuals who deeply care for the cause of IDD and have come together to form Nayi Disha. The founding team includes parents and siblings of individuals with IDD, who understand the challenges and needs faced by other similar families. We believe that equipping such families with relevant information will improve their care-giving abilities, expand the list of care/ education/ therapy options available, and empower them to become stronger advocates for their wards.

We understand that every person with IDD has unique needs and therefore will require different therapies and services (such as education, therapies and healthcare). We also recognise that every family faces a different set of questions and challenges at different stages of the life of an individual with IDD. Nayi Disha is our attempt to address these important information needs of families of individuals with IDD with this portal. We hope that this portal will help individuals with IDD receive the best possible care and access to services they require, and enable them to reach their full potential.

 

About Nayi Disha

Society

Nayi Disha Resource Centre is registered as Public Society with Registration no. No : 1319 of year 2015 under the Andhra Pradesh Societies Registration Act., 2001

Vision:

To empower and equip families of people with intellectual and development disabilities with information and knowledge to support their children in achieving their true potential.

Mission:

  • To provide verified and quality information in an easily accessible manner 
  • To build a supportive ecosystem of service providers, non-governmental organizations, and other families
  • To form a strong community of families

 

The aim of Nayi Disha is to empower the parents by providing them with information and connecting them to host of providers and fellow parents, just like our logo states: INFORM, CONNECT and EMPOWER! Our three pillars of our work are:

SERVICE PROVIDER DIRECTORY

We are building a supportive digital ecosystem of all the service providers working with people with Intellectual and Developmental Disabilities (IDD).

The combination of the type of intellectual disability, severity of the disorder, associated medical conditions, age, gender, economic status and geographical location of the family forms a unique need of services for people with Intellectual and Developmental Disabilities(PwIDD). Families are unable to often unable find out the right services. Nayi Disha team has, therefore, built a comprehensive and verified listing of more than 300 providers delivering a range of services (educational, healthcare, recreational and therapeutic) for PwIDD in Hyderabad. 

PARENT COMMUNITY BUILDING

Families of PwIDD provide lifelong and continuous support to their special child, which often leaves them feeling isolated, lonely and emotionally exhausted. In order to ensure that families remain motivated and receive emotional support through this difficult journey, Nayi Disha has created online groups for families . We also host

  • Parent support group meet

  • Family fun events

from time to time. Our families claim that they not only find emotional support but also find useful information from trusted sources, i.e. other parents .

 KNOWLEDGE HUB :

Once a child is diagnosed with an intellectual disability; families have various information needs and seek information on the disorder, associated complications, available government schemes etc. With this need in mind, Nayi Disha team is developing e-content for parent learning. Information on various disorders and different government schemes is already available on the online platform. Towards this goal, we conduct

  • Parent Empowerment Workshops:  Nayi Disha has partnered with special schools to regularly organize parent empowerment workshops on various themes from behavior management to nutrition.
  • Meet the Expert: Nayi Disha team also conducts a ‘Meet the Expert’ series which is an informal forum for parents to meet experts such as neurologists, developmental pediatricians, psychologists and get their queries answered.

Furthermore, we have also recorded these parent empowerment workshops and meet the expert events and made them available on the platform in the form of audios and videos.  We are partnering with subject matter experts from the field to develop articles, FAQs, audios and learning videos on various themes from nutrition to seizure management. 

 

Board Members of the Society

Amaresh Rao Malempati

Dr. Amaresh Rao Malempati is a Cardiothoracic Surgeon in Punjagutta, Hyderabad. Dr. M. Amaresh Rao practices at Nizam's Institute Of Medical Sciences in Punjagutta, Hyderabad.

Arun Pereira

Arun Pereira is Clinical Associate Professor of Management Education, and Executive Director, Centre for Teaching Learning and Case Development (CTLC) at the ISB. Prior to joining the ISB, he was tenured Associate Professor of Marketing at Saint Louis University, St. Louis, MO. Professor Pereira is one of the most popular professors on campus and has won numerous teaching excellence awards.

Hari Babu Bhagavati

Hari Babu is the former CEO of Ana Labs Pvt Ltd, a leading services provider in the field of Environmental Consultancy, Environmental Engineering, Analytical and Quality Testing, Mining Services and Technical Training. He is also the Founder/Director of Sai Krishna Teja Foundation, a charitable trust, a non-Government and non-profit organisation working for the welfare of persons with special needs.

Hari Babu is also the father of a son with Downs Syndrome – Sai Krishna Teja, the inspiration behind setting up the foundation.

Prachi Deo

Prachi has 13 years of technical and project management experience in the software industry in India and the US. She has led the IT team for a strategic marketing firm in Chicago. More recently she worked as a Project Manager with Microsoft Global Delivery in Hyderabad, which she quit to  to pursue her passion for working on the issue Intellectual Developmental Disabilities (IDD). Prachi's brother, who has Downs Syndrome, is her inspiration for setting up Nayi Disha.

Reema Gupta

Reema Gupta has worked as Associate Director of SRITNE at ISB, prior to that, she worked for EMC Corporation in Massachusetts. She has several years of experience working in the IT related field and was recognised as the “Top 10 women to watch” in Massachusetts, for her work in Science and Technology. Reema is a firm believer in the concept of inclusion and creating social surplus through the transformative power of Digital Technologies! To know more please read. She is the founder of Anokhi Aasha, an NGO which worked with children with disabilities.

Shyamal Kachare

Shyamal is based in Bangalore. She is currently a stay-at-home mother of a four year old diagnosed with cerebral atrophy. She has over ten years of industry experience and was the Vice President with Goldman Sachs in her last position.

Being a big believer in networking and a parent of a child with learning problems, she is very closely connected with other similar parents in India through the support group that she started. She is very actively participating through this support group in knowledge sharing, mentoring and inspiring other parents.

Sudarsana Kundu

Sudarsana is an expert on gender equality and development with more than 15 years of experience in the private and public sector. She is currently the Country Director for Gender at Work – a non-profit organization that works on issues of social justice. In the past she has worked with UN Women where she led the organization’s work on gender responsive governance with a focus on improved service delivery to women.

Vivek Subramanian

Vivek is the Co-founder and Executive Director at Fourth Partner Energy. Previously, he was a founding Partner at Avigo Capital, which is an Indian SME focused private equity fund manager. Vivek has an MBA from INSEAD. Vivek brings his in-depth experience of strategy, operations and financial management to the Nayi Disha Board.

Our team

Prachi Deo

Prachi has 13 years of technical and project management experience in the software industry in India and the US. She has led the IT team for a strategic marketing firm in Chicago. More recently she worked as a Project Manager with Microsoft Global Delivery in Hyderabad, which she quit to  to pursue her passion for working on the issue Intellectual Developmental Disabilities (IDD). Prachi's brother, who has Downs Syndrome, is her inspiration for setting up Nayi Disha.

Sudarsana Kundu

Sudarsana is an expert on gender equality and development with more than 15 years of experience in the private and public sector. She is currently the Country Director for Gender at Work – a non-profit organization that works on issues of social justice. In the past she has worked with UN Women where she led the organization’s work on gender responsive governance with a focus on improved service delivery to women.

Reema Gupta

Reema Gupta has worked as Associate Director of SRITNE at ISB, prior to that, she worked for EMC Corporation in Massachusetts. She has several years of experience working in the IT related field and was recognised as the “Top 10 women to watch” in Massachusetts, for her work in Science and Technology. Reema is a firm believer in the concept of inclusion and creating social surplus through the transformative power of Digital Technologies! To know more please read. She is the founder of Anokhi Aasha, an NGO which worked with children with disabilities.

Ambika

Ambika Srinivasan is a Molecular Neuroscience doctorate from McGill University, Canada. She has experience in teaching graduate courses, including a stint  conducting science outreach programs for a Biotechnology startup company at Hyderabad. She has keen interest in exploring and advancing the current teaching methodologies in the life sciences space.  Prior to pursuing her PhD, she gained research experience by working at CSIR labs such as Centre for Cellular and Molecular Biology and the Indian Institute of Chemical Biology. With a Masters in Biomedical Genetics from Vellore Institute of Technology, she has acquired academic training that allows her to better understand the risks and causes of developmental disorders.